I know it's been a while since my last post. To be honest, I haven't felt particularly inspired to share.
Let's see, last week I had another birthday. I appreciate all the greetings I received! I had to laugh at myself because I use to think my birthday was such an exciting cause for celebration (it's all about me). But this year was different. I almost forgot about it within just a few days of the date. Funny how perspective changes with each passing year.
One week ago, I started a new medication (released in March of this year) called Ampyra. This is a breakthrough medication as it is the first to treat a symptom of MS. Studies showed an improvement in walking speed for about half of individuals taking it. I've tried so many meds where I either had no effect or things blew up in my face, that I have reserved exuberance for the sake of preserving my sanity. So far, no side effects. Strangely enough, I may be experiencing a slight decrease in spasticity which is not a listed benefit of the drug.
Fingers crossed, another breakthrough medication will be approved by the FDA in September which my neurologist is very excited about prescribing for me. It is called fingolimod and will be the first in a class of oral disease-modifying drugs i.e. not an injection! What happened to my hopes of receiving Rituxin? Well, I'll take what I can get, and the availability of Rituxin is further off in the distance.
The Lord gives me enough grace to make it from morning til bedtime, and the next day He gives me a fresh dose of grace. So I just keep on truckin'- taking one day at a time.
Your faith is inspiring Jocelyn as well as your perseverence. Keep running the good race! You're in my prayers.
ReplyDeleteSometimes I wonder where this journey of life is taking us. I have learned in my 60 years that most of the time we don't know but that every moment of every day is a blessing. Stay in the positive and draw strength from God, your husband and beautiful Kate and all the friends and family who love you.
ReplyDeleteLove
Aunt Margie